For context, I’ve been diagnosed as type 1 (October 2025) but I don’t think I’m actually type 1
Because I’m only 21 and not considered obese, I don’t really fit type 2 characteristic so getting diagnosed as type 2 didn’t make too much sense for me.
During my initial diagnosis, I was hooked up to a
I was misdiagnosed as type 2 myself and stuck in limbo for a long time.
I think your takeaway from this should be that while knowing your type is important, the most important thing is to get the correct treatment.
Whether your diabetes is caused by type 1 diabetes, MODY or type 2 doesn't matter if the treatment that actually works well for you is to be on a full insulin regime. Apparently that's what your body needs in order to function healthily.
I 100% the discomfort of not knowing, but you also need to understand that knowing isn't going to change that this treatment is working for you. You can learn a lot from people who are on the same treatment as you, even if the underlying cause for diabetes is different. That's incredibly valuable.
Edit: if a non insulin treatment is what you
This is a good perspective ! Thank you,
I do wonder if there’s a possibility to switch from insulin to oral medication and how that would work but because insulin works so well for me, I genuinely don’t know what to expect.
I’ll be curious about what my type is but I’m thankful for my current medication keeping me stable
It might be possible to switch from insulin to oral meds, perhaps for a while, maybe not. But even if it is MODY, it's entirely possible it's a type that may require insulin regardless.
I think what I'm really trying to say to you is that oral meds sound easier, but they're not by definition always easier. I spent a long time on oral meds as a type 1 who produced insulin for a while and it was really not great.
Oral meds primarily target two/three things: making your body more sensitive to the insulin you produce, making you produce more insulin, making your kidneys pass glucose more aggressively. While you can control the dose of those meds, your body's response may be very irregular. That happened to me, I had way more lows and highs with oral meds than I did with insulin because the m
Oral meds are not by definition easier to manage than insulin.
Ok, but first line (diet and exercise) and 2nd line (metformin) T2 diabetes treatment is going to impact your quality of life less than insulin.
If OP's body doesn't produce enough insulin, none of this matters.
Also OP is considered type 1 and might be MODY, both which require insulin (depending on the MODY subtype).
All I'm saying is that oral meds sound easier and like they provide a higher quality of life, but my personal experience and the experience of several diabetic friends says it's not that black and white. Lifestyle matters for everyone, diabetic or not, but oral meds are not the best course of action for every diabetic. Even type 2s may need insulin sooner than later instead of (just) oral meds.
Insulin is a useful tool in diabetes management and shouldn't be considered the last line of treatment in type 2, or any type really.