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Diagnosed as type 2, GAD65 at >250

shared by: hangstaci818 · · 💙 37 · 💬 35 · Join the discussion

Not even sure where to start. Diagnosed in 2021 at age of 21!!! Not obese, worked out regularly but went into hospital with DKA during pharmacy school. Diagnosed as TYPE 2 by 2 different doctors, was put on metformin and farxiga, a1c dropped from 14 to 5.7 in 1 month, thought we were good. A1c was u

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Comments (37)

Grepaugon · · 💙 16 Reply to comment

Welcome to the 1.5 club. Now you can eat whatever you want as long as you have insulin on hand! I was "type 2" for about 7 years. Same story as far as A1C journey went.

hangstaci818 · · 💙 6 Reply to comment

Still waiting for insulin resistance score. Hope its low (should be bc my body not making insulin lol). So i can inject and kill candy. Havent had snickers bar in 4 years. Jk gotta control this shit

Mr_Truttle · · 💙 7 Reply to comment

I was diagnosed in the late 2000s, in my mid teens, as T2. Managed BG great with keto and metformin for a long time, but my levels started going up steadily last year beyond any lifestyle escalation. Tested positive for all three antibodies, just lovely. I still don't eat carbs so just basal insulin generally does well for me. But still not as steady on the blood sugar curve as I used to be sadly.

hangstaci818 · · 💙 3 Reply to comment

Did u test insulin resistance? Why not eat some carbs and inject rapid acting?

Mr_Truttle · · 💙 1 Reply to comment

Because I don't want to deal with more insulin than I absolutely have to. I don't think I've had any insulin resistance testing for quite a while.

Majestic_Economy_881 · · 💙 13 Reply to comment

Glad you got to the bottom of it!

Just a little nitpick, though: maybe reconsider the phrase "eating clean." Do other people "eat dirty"? There's a value judgment there. Sorry not picking on you personally, just that terminology bugs me and I wish we could find something better.

Southern-Wolf-02 · · 💙 -1 Reply to comment

Do other people "eat dirty"?

Well... yeah. Some people have terrible diets. For example, I'd say that someone who mostly eats fast food has a "dirty diet". But maybe speaking about eating unhealthily/healthily would be more precise.

Majestic_Economy_881 · · 💙 2 Reply to comment

I think what would be most precise, and most helpful, is simply to describe the foods one eats, with no value statements (clean/healthy/pure/etc.) attached. When talking to a dietician/nutritionist, you would give them concrete examples, e.g. "scrambled eggs with cheese and whole grain toast 3 days a week, greek yogurt with berries the other 4 days". That's pretty detailed but you get the idea.

I guess the basic issue is that terms like "clean" or "healthy" are relative. If I grill a small steak and have it with some whole grains like quinoa and some roasted veggies, am I eating "clean" or "dirty"? To some people, it's "clean" because I cooked it myself from whole minimally processed ingredients and didn't inhale some big McValue meal. To others, it would be "dirty" because I cooked red m

hangstaci818 · · 💙 1 Reply to comment

We are in diabetes subreddit. Not socioeconomic equality or religious or whatever subreddit. Save your comment for those subreddits :)

Majestic_Economy_881 · · 💙 1 Reply to comment

Glad to see you approach information with an open mind.

hangstaci818 · · 💙 1 Reply to comment

One could argue that bad carbs and bad fats are harmful thus not eating clean lol. I can also argue that chicken breast is eating clean but bigmac from McDonalds is not…. Not judging anyone just telling my story.

[deleted] · · 💙 2 Reply to comment

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hangstaci818 · · 💙 0 Reply to comment

u cant argue that grilled chicken breast is dirty food lol

[deleted] · · 💙 1 Reply to comment

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hangstaci818 · · 💙 1 Reply to comment

vegans cant argue that grilled chicken breast is dirty food. I was talking about macros since the topic is diabetes not sociology. idk why people are so sensitive

Southern-Wolf-02 · · 💙 2 Reply to comment

Yeah, I can't believe that people are bothered by saying that something is "dirty food". They may say that they don't think it's a precise way to describe food, but feeling uncomfortable about saying that some diets are better that others is another whole level.

hangstaci818 · · 💙 0 Reply to comment

Nah u shtop now my mcflurry is perfect and full of vitamins

AdIll7946 · · 💙 4 Reply to comment

Doctors love to do this. They assume everyone is T2.

When I got diagnosed at 20 and put on metformin, they told me to “work out” after eating to bring my sugar down. Cue 1 year of staying up all night riding an indoor bike after eating a low carb dinner because I was still spiking. Basically just stopped eating completely for a while cause no matter how much exercise I did, my sugar was still high. Finally, I ended up in the hospital with DKA and they tested my antibodies.

This needs to be part of the original diagnosis. Glad you are on the path to figuring out what you need!

Infamous-Mission-878 · · 💙 0 Reply to comment

There are important differences between type 1 diabetes (~5% of persons) and type 2 diabetes (90-95% of persons). Other types, such as unusual genetic forms of diabetes, also exist. Diagnosing the type of diabetes is important for appropriate medical treatment.
There are so many T2 than T1
T2 is mostly the processed food we eat

jimijam01 · · 💙 1 Reply to comment

Good luck with your endo, fired 2 already, just drug pushers working at the VA

hangstaci818 · · 💙 1 Reply to comment

Just talked to new pcp. Gave me lantus and lispro and said i was misdiagnosed (DUHH)

hangstaci818 · · 💙 1 Reply to comment

Edit: typo for providing…. Still shaking

Grepaugon · · 💙 3 Reply to comment

Also, not to pile on to your new life changing event, but we're also at high risk of developing other autoimmune diseases. So if you notice weird things going on. Like swelling or stiffness or rashes for no reason, especially chronic ones, investigate further.

Luke38_Greenoble · · 💙 1 Reply to comment

surtout si tu as été diagnostiqué avec des GAD65, fait attention, plusieurs autres maladies auto-immunes se développent avec cette saloperie que sont les GAD65.
Sinon même cas que toi, diagnostiqué à 25 ans, je faisais attention à ce que je mangeais (j'étais même plus salé que sucré), ce qui a aiguillé mon médecin, en plus de la perte de poids et des somnolences.

Et après c'était parti pour tout un check-up car les GAD65 m'ont provoqué plusieurs autres pathologies à la suite. Pour plus de détail envoie un MP.

aeseline · · 💙 1 Reply to comment

Good on ya for getting to the bottom of it!

Infamous-Mission-878 · · 💙 1 Reply to comment

Mounjaro is a lifesaver. It finally stopped the food noise and got my A1C down to a steady 5.7! my goal is drop more A1C and I lost weight with steady diet and exercise . It’s the only thing that has worked long-term for me. I’m off all other sugar meds except only taking Jardiance for my heart and kidneys protection
I can have little bit of candy and chocolate daily not spike up because  hormones are working again

I try many diets / meds and nothing work except for Mounjaro
My plan is to microdose later on when my insulin resistance isn't so bad
Only big problem is you can't just stop Mounjaro because I try and so all my problem came back
if you heal your body enough than microdose with fasting
there are Youtube doctors that talk about GLP1.
mounjaro and zepbound are the sam

tlapasaurus-rex · · 💙 0 Reply to comment

I just went through a similar situation; I was diagnosed pre-diabetic in 2021 at age 39 and as T2 diabetic in 2022, and put on oral meds, which worked for a while, then my A1C kept slowly rising, so another med was added which kept making me hypoglycemic, but my A1C still kept increasing. The T2 diagnosis never sat well with me...I was never obese, never sedentary, and my diet wasn't great, but wasn't terrible. I started using a CGM, which was really helpful, but I was confused by some of the patterns I was seeing, and my GP kind of dismissed my concerns. I got put on a GLP-1, which got my A1C in check, but I was still experiencing hypo episodes regularly. Did some research and came across LADA, and I met nearly every diagnosis criteria for testing (including already having an autoimmu

hangstaci818 · · 💙 1 Reply to comment

R u on insulin?

tlapasaurus-rex · · 💙 0 Reply to comment

No, not yet. My GP won't diagnose me (which I get, liability and all), so I'm going to discuss insulin with the endo when I go see them. I've done some research, and GLP-1's can be effective with T1.5/LADA if you still have some beta cells function left. But, yes, eventually, I'll have to be on insulin.

Mccree13 · · 💙 0 Reply to comment

Consider mody. Your story is very similar to mine. Young, fit ideal weight. I have mody 3 and the treatment is slightly different than “ normal “ diabetes.

hangstaci818 · · 💙 2 Reply to comment

How to test for mody? How is treatment different.

Mccree13 · · 💙 1 Reply to comment

You need a genitc test to confirm. I have been on sulfonylureas (like glipizide) and it has been working for the last 20ish years. Mody doesn’t react the same to other treatments as well but they still work. I am on metformin and Jardiance as well. Those have been added recently by my endo but at some point I will require insulin.

https://en.wikipedia.org/wiki/MODY_3 is the form I have but there are many variations

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